~ A Message from Max ~
“Whether you have a personal relationship with somebody who has AS, or you’ve only met an AS sufferer once, I hope these videos will help you appreciate the true difficulty of living with the syndrome.
I am doing these videos not because I am seeking pity, but because I know there are a lot of young boys and girls who have the syndrome and do not know they have it.
I wasn’t diagnosed with AS until I was 18, and being undiagnosed can lead to confusing, embarrassing, and sometimes traumatic experiences; experiences which are not just unique to me. In fact, they afflict most people who have AS.
If I had known when I was younger that I had the syndrome, I could have saved myself a lot of grief and lived a much more fulfilling and productive life. That’s not to say I don’t lead a happy life now, but I think we can all agree that by addressing these types of problems earlier, we can spend much more of our life feeling fulfilled and feeling productive, especially considering we have such a short time on this planet.”
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